$56,984 / $50,000
Welcome to our team page!
On Sunday March 17, Andrew Craig and Patty Nozato Craig will run the United Airlines NYC Half to raise $10,000 on behalf of Melanie Craig & the ALS Therapy Development Institute, an official charity partner.
Roughly 1 in 400 people will develop ALS in their lifetime, and there are an estimated 30,000 people living with ALS in the U.S. at any given time.
Our effort to run and raise money is very personal. The SOD 1 gene that causes approximately 10% of ALS cases has been an unwanted hand-me-down in Melanie’s family: afflicting her grandmother, mother, two uncles, cousin Patrick Behan, and now Melanie.
While there is still no known treatment that stops or reverses the progression of ALS, we have been blessed that Melanie and her cousin have been receiving a recently approved drug Tofersen/Qalsody for SOD1 carriers for the past year and a half. It is truly a miracle; it has slowed its progression and they are both still with us.
Your donations make it possible to continue the critical advancement of promising therapies that are slowing the progression of ALS today and will help END ALS. Every dollar counts - and we will match the first $5,000 of donations made to this page. Together we can make a difference!
Thank you,
Craigs’ Crew