I was diagnosed with ALS in September of 2023. My husband Walt and I were very familiar with this disease as his brother, Steve Fowler lived with ALS for 13 years until he passed away in 2010. Steve was active in raising funds for ALS TDI in its early stages. In his honor, we want to continue to support ALS TDI to find a cure for ALS.

My symptoms started in 2021 about 5 months after I had a nasty fall and hit my head. I noticed that my voice was changing. I went to 3 ENTs over a period of two years or so, trying to figure out what was going on. The last ENT I saw, Dr. Shawn Nasseri urged me to see a neurologist. I saw several neurologists and they were all in agreement with the diagnosis.

My symptoms are mild compared to many who are living with ALS. I am also fortunate to have started on meds recently approved by the FDA that could help slow down my progression.

I am surrounded by family, friends and doctors who have been incredibly kind and supportive. Despite this diagnosis, I know how good my life is and feel nothing but gratitude.

ALS is a rare disease affecting only 30,000 people in the U.S. and 450,000 people worldwide. There is currently no cure. On behalf of the ALS community, I humbly ask for your support for ALS research. The progressive nature of this disease makes finding a cure an urgent priority for those of us living with ALS. I thank you for your consideration.

~Michele and Walt

P.S.  Through December, every donation you make to the ALS Therapy Development Institute (ALS TDI) will be DOUBLED, thanks to a remarkable match of up to $50,000!