Kevin Swan was diagnosed with ALS in February of 2012 and founded A Life Story Foundation in April of that same year. Because of Kevin Swan, and the people that have supported him in his journey with ALS, research into treatments has moved faster. That’s all there is to it.

While facing this horrifying disease, he jumped into action, and has raised hundreds of thousands of dollars to do the work that has to be done to change the prognosis of this currently fatal disease. I met Kevin soon after his diagnosis. His wit was what really got me. Not his ALS. He made me laugh (and still does); not with comedy, but with intelligence, and good natured snarkiness. 

In the coming years, we’d meet at the FDA, at bars, at conferences, at his home, and fundraising events. Because he is all in to end this disease that brought us together. Crazy irony, there, I know. Pictures of Kevin hang in the lab at ALS TDI. While many of the scientists here know him already, his picture inspires us to work even more ferociously, every day, 7 days a week, 24 hours a day. Help us honor Kevin with a gift to accelerate research. We’re not done yet.

Carol O. Hamilton

Senior Director of Development 

ALS Therapy Development Institute