Build your own fundraising page and/or team and start raising money to help #EndALS
Become a FundraiserThis August 2015 Ice Bucket Challenge research fund is set up in loving memory of Peter Hoffman-Kipp. He passed on March 25, 2013 after almost 6 years of fighting ALS.
Peter was our guy. He was a teacher, dad, husband, son, friend and coach. He loved books, art, classical music, good jokes, movies and deep conversations. He was a beautiful man with a steady gaze, a deep calm and a radical kindness.
In 2007 (when our sons were 1, 6 and 8 years old), Peter began to have problems with his speech. He was teaching class and students started having a hard time understanding him. As Peter turned 38 and our kids turned 2, 7 and 9, Peter was diagnosed with ALS. The second- and third-opinion neurologists gave us the famous ALS line: “Get your things in order.” There was no hope. There was no treatment plan.
Peter searched the globe for treatments and sustained a hope that often carried us all. He intended to leave no stone left unturned. He found alternative treatments that helped his asthma and nutritional programs that strengthened his immune system and stamina. Dr. Engel and Dr. Mahajan at the USC Neuromuscular Center prescribed game-changing IVIG treatments. Dr. Klinghardt and Dr. Schaffner in Washington brilliantly and diligently explored potential connections to Lyme disease as they introduced multiple therapies that might alter or slow Peter’s type of ALS. The PK Protocol, stem cell treatments in the Mediterranean and spiritual healing in Brazil with Akasha all worked to help Peter fight bulbar-onset ALS.
Something in the treatments we tried helped Peter substantially outlast his initial prognosis. There is merit in the work being done by the ALS Therapy Development Institute. There are not yet known treatments that universally slow or stop the progression of ALS. We need to devote the resources to identifying the subgroups of ALS and developing the treatments that correspond to each distinct type of ALS.
Since 1999, the Institute has tested hundreds of potential treatments (including ones our family tried) with urgency and precision. It has grown to become the largest ALS-dedicated laboratory in the world and the very first non-profit biotech ever created. ALS is cruel. It is a rarefied group of people who stay the course and hold focus on such a devastating, complex and underfunded disease.
Please search this website and learn about the Precision Medicine Program and the promising treatments related to Anti-CD40L and SOD1 antibodies. ALS research is progressing significantly. When Peter was diagnosed with ALS, there were few clinical trials. In 2015, there are over 100 clinical trials worldwide.
While the timing didn’t work out for Peter, he would want us to stand with the families currently living with ALS and the thousands more diagnosed each year. Thank you so much for visiting this page. We truly appreciate your concern and we invite you to join us in raising awareness and funds for ALS research.
With love, hope and deep gratitude -
The Hoffman-Kipps
{{activity.User.FirstName}} {{activity.User.LastName}} created a new fundraising page team fundraising page event fundraiser
Anonymous {{activity.Donation.FirstName}} {{activity.Donation.LastName}} donated a hidden gift amount {{activity.Donation.Amount | currency}} {{activity.DonationDetail.DedicationType | lowercase}} of {{activity.DonationDetail.HonoreeName}}
"{{activity.Text}}"
{{activity.Donation.FirstName}} {{activity.Donation.LastName}} made a purchase
"{{activity.Text}}"
{{activity.Donation.FirstName}} {{activity.Donation.LastName}} registered for the event
"{{activity.Text}}"
Page {{currentActivityPage}} of {{totalActivityPages}}
