Build your own fundraising page and/or team and start raising money to help #EndALS
Become a FundraiserPlease come out to celebrate the end of summer on Saturday, September 12th 2015 and help us raise money on behalf of Matt Bellina for ALS Therapy Development Institute (ALS TDI) a privately funded, non profit organization. Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's Disease, is a neurodegenerative disease that causes muscle weakness and paralysis. At this time there is no cure and insufficient treatment options. Matt is a close family friend of mine and it is an honor to fight this disease along side him.
Unfortunately Matt was diagnosed with ALS in April of 2014 at the age of 30, though he had shown symptoms of the disease as early as 2006. Matt graduated from Virginia Tech in May 2005 and went through flight training to become a Naval Aviator. Years later, he was medically grounded and thus began the road to the diagnosis he received in 2014. Matt, his wife Caitlin, and their two young boys transferred back to the East Coast in order to be close to family and friends. Matt has recently retired as Lieutenant Commander of the US Navy. He now serves as an Ambassador for the Young Faces of ALS and helps spread awareness about ALS. In addition Matt participates in a gene – mapping program to help find a cure for the disease.
Patients suffering from ALS don't have the luxury of treatment to prolong their lives. This disease kills, and as of right now, there is no way to stop it. It is a horrible, brutal, cruel way to die. We need to find a cure NOW!
Please come out to the Pilsner House on Saturday, September 12th from 6 -8 pm, $20 cover, CASH only bar. If you are unable to attend and would like to donate, please follow the link below. ALL proceeds (excluding drinks) go to ALS research.
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